Me & Hep C

Hi everyone! My name's Maria, I'm English, 41 years old, & single. I was diagnosed with Hepatitis C on Monday 4th September 2006 - a dreadful experience which I will write further about in a posting. I currently live in Germany, but am planning to return permenantly to the UK at the beginning of October 2006. This is my diary of my life with Hepatitis C.

Name:
Location: Telford (originally Hochheim in Germany), Shropshire, United Kingdom

What didn't I say in my introduction??? I've got 2 daughters, Natasha 18 & Naomi 16, who are the best things that ever happened to me & whom I'm unashamedly proud of. I'm also blessed to have 2 wonderfully caring parents, & 2 of the best sisters you could ever wish for (one of whom is actually my niece, but more like a sister, as there's only 11 years between us). I qualified as a registered general nurse in 1986 & worked as a staff nurse in general medicine, surgery & rehabilitation for 10 years. I was diagnosed with rheumatoid arthritis in 1991, not even a year after Naomi was born & in 1996, it got so bad, that I had to give up nursing & retrain. Since then, I've worked in administration of one kind or another.

Thursday, May 31, 2007

I feel good ....... I knew that I would, now....


Hey people! This is the start of my 2nd week - had my 2nd jab this morning & I must say, so far, so good!! I know things can rapidly change, I'm certainly not deluding myself that the whole 48 weeks is going to be so easy, but I have given myself a pat on the back for sailing through the first week.


I had my 1st jab at 10am last Thursday & decided not to go to work afterwards as I wasn't certain of how I'd react to the treatment. As it turned out, I had a very good day, with just a bit of hip & backache to contend with (& after 15 years of coping with arthritic aches & pains, this wasn't a big thing at all!!)


Friday is normally gym day & last Friday was no exception. I was up at 6am, had 1 1/2 hrs in the gym & then straight on to work. I found the gym workout a little harder going than usual, but took it in my stride. I did get a slight temperature too, during the day, but 2 Paracetamol & I worked my way through it. The only one thing that p!ssed me off a bit, was the fact that I was peeing every 3/4 hr or so & I couldn't settle to work at a job for needing the loo so often - LOL!


Saturday through to today have all been good days. My urinary frequency has settled down nicely & although I feel a little short of breath at times & have noticeably more nasal mucous, I STILL FEEL GREAT!!


On Tuesday, I saw my rheumatologist. He was quite pleased with how I'm handling things & was impressed that I'm managing fulltime work & the gym! He's advised me to try cutting down my 10mg Prednisolone (steroids I take for the arthritis) as it's slightly too high a dose to take long term & I've been on this dose for nearly a year now. So, the plan is to take 9mg for a month & if that goes ok, then reduce a further 1mg each month - nice & easy does it!! He said that if I can get down to 7mg, he'd be happy - if I can get down to 6mg, he'd be over the moon.


So, one day at a time, coz I am a realist & know that, not only have I got to deal with the hep C treatment, I've also got to look after my arthritis too!


I must admit though, before I forget, that I did get a bit snappy with my niece on the phone last night, which isn't really like me. She's coming over from Germany at the end of July for a holiday & we were discussing the legal limit for bringing cigarettes with her as they're cheaper there than here. Anyway, she does tend to repeat herself sometimes & I was late to go & meet a friend, so (I'm sorry to say), I did snap at her, which I have since apologised for!


That brings me to today. I wanted to have my jab at the same time as last week, but couldn't coz I had an appointment with my chocolate teapot at 9am. So I did it before I left home, then went to clinic & reported that I felt great & left with a blood test form for next week & a stern warning that I mustn't expect the whole time on treatment to go so well - hey, I'm a big girl & a realist so tell me something I don't already know!! I had my bloods done too & will get the results when I return to clinic next Thursday.


Earlier this week, I posted a photo of me on the Hep C Forum flicker page & added the caption "What I'll look like if my hair falls out on treatment", meaning I'd just shave it all off! I've had such a lovely response from people telling me that I look cool in that photo (attached to this post) & encouraging me to shave my head now, before the hair fall out. So, I mentioned this to the couple of girls I work most closely with (the only ones who know I'm on 'a kind of chemo' apart from my manager) & they thought shaving it prematurely to be a good idea coz then people won't ask questions about why my hair's falling out (if it ever did happen) & that I should do it for charity. So, that's the plan - get people to sponsor my head shave & hopefully make a little bit of money for Hep C, which I think is such a cool idea!! Will let you all know how it goes & will post photos, of course.


So folks, one week down, 47 to go.


More next week............

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